tag:blogger.com,1999:blog-1497100330885051839.comments2019-05-18T00:51:02.914-05:00Worth His SaltAmyhttp://www.blogger.com/profile/10628768674387293285noreply@blogger.comBlogger174125tag:blogger.com,1999:blog-1497100330885051839.post-4499671235539699732019-03-30T21:26:27.848-05:002019-03-30T21:26:27.848-05:00Amy, I don't remotely pretend to know what to ...Amy, I don't remotely pretend to know what to say in response to this, except, I love you with all my heart. You and Jackson have a big place in my heart and always will. <br />You're the strongest women I know and I wish I could say that I wish to grow up to be just like you. ❤Anonymoushttps://www.blogger.com/profile/18439260658258961408noreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-86458089476247545142017-06-14T09:29:24.080-05:002017-06-14T09:29:24.080-05:00"I am somewhat seriously considering collecti..."I am somewhat seriously considering collecting essays on grief and making a book we would all feel better for writing but nobody would want to read." <br /><br />Let's do it.Rachelhttp://thisisrachelwinstead.comnoreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-29972333175953158712017-06-14T07:19:24.490-05:002017-06-14T07:19:24.490-05:00It's like PTSD and I get you momma!It's like PTSD and I get you momma!Annahttp://www.texaschowgirl.comnoreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-42231327183691109632017-06-14T06:31:33.228-05:002017-06-14T06:31:33.228-05:00Writing has always been my therapy, and after beco...Writing has always been my therapy, and after becoming a mother it also became my haven to understand, process & (somewhat)copen with the curveballs life tends to throw out of spite from time to time. <br />I'm drawn to your words in the way so few can do, because although I don't know CF personally, you let me (us, everyone) see your heart so clearly when you rip open your chest and bare your most vulnerable self in this way. It's very brave, and hopefully cathartic, as things spin out of your control to be able to put one foot in front of the other metaphorically, so that being said I hope in your expression, you've lifTed a little bit of the weight and burden from your chest, and can get a few hours of rest for your mind and soul. <br /><br />I can't begin to imagine life and your mind, riddled with the fear and worry having a chronically ill child , but just wanted to stop and say thank you. Thank you for being his warrior when he can't, and for being unapologetic and unafraid in your writing. You make your village proud, Amy. Here's praying for that elusive 22%.Anonymoushttps://www.blogger.com/profile/00001491630895913483noreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-68379571850913351422016-11-07T00:24:34.695-06:002016-11-07T00:24:34.695-06:00it contains lot of information.nice post
Silver P...it contains lot of information.nice post<br /><br /><a href="http://www.safaltrading.com/mcx-positional-calls.html" rel="nofollow"><b>Silver Positional Call</b></a><br />Accurate Gold Callshttp://www.safaltrading.com/noreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-86033571622299941962016-08-24T07:56:49.170-05:002016-08-24T07:56:49.170-05:00Amy you are what is called a Human Mother and Woma...Amy you are what is called a Human Mother and Woman. Our crying is what keeps us sane in times of stress. Who cares if we do it in public or hidden in our bathrooms? You are amazing to have done and what you will do without having all your family right there by your side to take over some of your stress when you need it. It is not wrong to ask for help when you meed it either. Some days crying just isn't enough. Love you.Anonymoushttps://www.blogger.com/profile/08278042558798023577noreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-18494873852842901582016-08-23T21:38:20.613-05:002016-08-23T21:38:20.613-05:00Oh goodness, you're a wonderful human being. J...Oh goodness, you're a wonderful human being. Just keep being yourself and you'll be just fine. Keith Joinerhttps://www.blogger.com/profile/13529088906411980686noreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-45084135432020297372014-06-04T22:10:03.555-05:002014-06-04T22:10:03.555-05:00Wow, that is awesome. Something to celebrate for s...Wow, that is awesome. Something to celebrate for sure. Keep up the good work Mom!! Blessings to you.Ginahttps://www.blogger.com/profile/13285398887015081748noreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-47650894695499189032014-05-23T01:31:56.490-05:002014-05-23T01:31:56.490-05:00Hi Amy, I hope that you and your family could stay...Hi Amy, I hope that you and your family could stay strong to get through this. You are strong and you have a lovely family. And what I admire most about you is your ability to look on the bright side even when its dominantly dark. Hilarious post, your family and friends are lucky to have you as well.Howie Longhttp://www.treatingbronchitis.orgnoreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-83862379854492411142014-04-22T13:29:58.965-05:002014-04-22T13:29:58.965-05:00time you got that Skype back on. Mtime you got that Skype back on. MMatt Denshamhttps://www.blogger.com/profile/03973234817870098487noreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-2931874379002228482014-04-03T20:36:10.473-05:002014-04-03T20:36:10.473-05:00Gemma- I can't tell you how much hearing from ...Gemma- I can't tell you how much hearing from you has helped me feel better. I had forgotten how much you went through to get her eating. Thank you for the burst of hope and support! XoxoAmyhttps://www.blogger.com/profile/10628768674387293285noreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-55637265865098879222014-04-01T13:08:45.866-05:002014-04-01T13:08:45.866-05:00Hi Amy!
Just want to say that you may remember Sop...Hi Amy!<br />Just want to say that you may remember Sophies journey with oral aversion? Didn't eat anything for 5 1/2 years. We did an inpatient tube wean over 10 days and I am pleased to say it worked! She has been eating for just over a year now.<br /><br />I hope the same success will be found for J.<br />Big hugs for hard times. Stay strong lovely.<br />XGemmahttps://www.blogger.com/profile/11957950095913776584noreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-15170648093497757302014-02-23T23:12:46.688-06:002014-02-23T23:12:46.688-06:00I needed those words. Thank you Amy.I needed those words. Thank you Amy.Christina Fuhrnoreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-29298442033931465692013-07-16T10:13:06.094-05:002013-07-16T10:13:06.094-05:00Hi Amy! Glad to see you back to blogging and to h...Hi Amy! Glad to see you back to blogging and to hear that J is doing well. Don't feel guilty for feeling the need to be "removed" from the intensity that CF can create for others. I generally try to live my life removed and don't feel like I should have to WANT to connect with those dealing with the more serious effects of CF just because CF is part of my life. I see it sort of as only being strong enough to carry my own burden. I don't have the energy to put into feeling an emotional burden from someone else because it negatively affects how I carry my own CF burden. I try to just take things one step at a time--just the hurdles I see in front of me--and not to worry about the possibilities of what is to come if it's far enough ahead that I have no ability to control it. I know that as a CF mom, this must be a LOT more difficult having all the seriousness of it instantly thrust upon you compared to what I feel as a patient having grown into the understanding of what CF is. Stay strong. Keep doing all the proactive things you do for J and know that I think it's a really, really great thing that you and your family no longer feel like CF is a focus, but merely an aspect of your lives. Congrats on opening your massage business and best wishes for M with his new career path! Take care.<br /><br />NanosNanosnoreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-2055207759991150992013-07-08T23:04:25.364-05:002013-07-08T23:04:25.364-05:00I don't know how you do it sometimes. If I win...I don't know how you do it sometimes. If I win the lotto, I'm sending you a check. It shouldn't be that hard to get insurance. Is there a secure location you could keep the 2K so it doesn't show up in a bank account. Hell, the banks don't give any interest these days. <br /><br />After seeing the pictures of Jackson's rash, I don't know what to say. As a parent that is so hard to see and deal with. <br /><br />I told my daughter the other day that I have a very low opinion of humanity as a whole. Then I read your post and I need to tell her that despite the scum out there, there are people like you and Mike who work hard and are just trying to do the right thing day after day. Stay strong. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-2734112439619828622012-09-11T22:40:18.936-05:002012-09-11T22:40:18.936-05:00Yes, ma'am, you totally deserve that break. I ...Yes, ma'am, you totally deserve that break. I love how you write. It's wonderful getting the update and I'm so glad to hear about the vacation. Love you!Rachelhttp://punchpresence.comnoreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-45669837590134095662012-05-11T07:03:33.501-05:002012-05-11T07:03:33.501-05:00Reading this post...what a GREAT way to start the ...Reading this post...what a GREAT way to start the day, the weekend! So happy Jackson is doing so well, Michael has moved on to do great things, and Amy is showing her stuff with her amazing event-planning talent! Can't WAIT to attend the walk and fundraiser with all of you!Kanani Mahelonahttp://www.kananimahelona.comnoreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-28712566509931958062012-03-18T12:25:38.073-05:002012-03-18T12:25:38.073-05:00Amy, this post is full of the love and hope and de...Amy, this post is full of the love and hope and determination that will pull you through the uncertainty and change. What a joy to see Jackson's happiness and good health at 2...you and Mike have worked amazing miracles!Kanani Mahelonahttp://www.kananimahelona.comnoreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-81209973970768819702012-03-16T08:20:59.134-05:002012-03-16T08:20:59.134-05:00Beautiful!Beautiful!Caseyhttps://www.blogger.com/profile/05538919581735963288noreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-72131809380245154432012-03-15T22:51:16.232-05:002012-03-15T22:51:16.232-05:00bless you all Amy...what an extraordinary person y...bless you all Amy...what an extraordinary person you are.<br />This part about his birthday is so beautifully written that it just sings. such poetry in your words and timeless truth.<br />praying for the right road to take your sweet family up!!<br />please let us all know what you need until that happens.January Harvesthttps://www.blogger.com/profile/13168123225818884479noreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-41714899379978230592012-03-14T22:55:06.717-05:002012-03-14T22:55:06.717-05:00Lisa, I'm emailing you right now!Lisa, I'm emailing you right now!Amyhttps://www.blogger.com/profile/10628768674387293285noreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-56954551982670696092012-03-14T19:59:34.146-05:002012-03-14T19:59:34.146-05:00Hey, Amy! My six-year-old daughter is getting rea...Hey, Amy! My six-year-old daughter is getting ready to get her g-tube in April. I have some questions that I hope you can answer. How long does the temporary tube stay in place until the real one is inserted? How long is recovery? How was the pain right after surgery?<br /><br />Lisa<br />lisaellington.thirtyone@yahoo.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-68729916834253249922012-02-21T19:44:28.668-06:002012-02-21T19:44:28.668-06:00Hooray!!Hooray!!Just Gloryhttps://www.blogger.com/profile/02978272177393618481noreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-77884079269253552512012-02-20T21:00:46.205-06:002012-02-20T21:00:46.205-06:00Those clinic days are FUN! Days when you feel like...Those clinic days are FUN! Days when you feel like leaving clinic and going out for a nice stroll around the mall and a big, fancy lunch at a sit-down restaurant that doesn't have grease stains on the menus.<br /><br />I revel in those days' memories each time it happens. You'll have many more of them in his bright future. Remember them to offset the other days.Jesse Petersen (CF Fatboy)https://www.blogger.com/profile/13300381673876261511noreply@blogger.comtag:blogger.com,1999:blog-1497100330885051839.post-6556847152510743802012-02-19T08:14:41.543-06:002012-02-19T08:14:41.543-06:00Kool and the Gang rings in my head, "C-E-L-E-...Kool and the Gang rings in my head, "C-E-L-E-B-R-A-T-E good times, COME ON!" This post made me smile from ear-to-ear; and what I wouldn't give to be dancing around the house w/ you and the kids right now!!Kanani Mahelonahttp://www.kananimahelona.comnoreply@blogger.com