Sorry for the lapse in posting. Jackson is doing very, very well right now. He had a bowel obstruction that landed him in the ER a couple of weeks post op, but didn't even end up being admitted, and has been thriving like a little weed since.
It's summer, my kids are home with me, and we are spending our days making popsicles from fresh fruit and cream, blowing bubbles filled with laughter, running through sprinklers and snuggling up for family siestas during the heat of the day.
In other words, if you overlook the tubes and the machines and the shelves and cabinets full of meds, and the diligent hours still spent on treatments, we are ignoring CF. We are stealing every moment we can and living our happy summer with as much disregard for it as we responsibly can. We have been granted a fleeting respite from the chronic knots of worry that live in the pits of our bellies, and not a moment too soon.
I need a break.
We have been going hard and fast for a while, and I'm at my limit.
I love our life, and this blog, and the fact that so many people care so much how J and the rest of us are, and are there for us when we are in pain or in fear, and just as much so when we feel joy and celebration. But for this brief and passing time, I'm just going to step away from the keyboard and live.