Sunday, September 18, 2011

Life With CF Isn't Always Just About CF

2011-09-09 13.34.45 In my last post I alluded to a few of the MANY things keeping us busy these days. Usually, I try to keep my posts here on topic, because this blog is about our life with CF, not what I think about foreign policy or Russian pre-existentialism. So on occasion there is some internal debate about whether certain topics are relevant enough to warrant a post. I tried to write a post earlier today about how CF relates to some of our current madness, and was frustrated with how long it was taking to explain how the two were intertwined. After a dozen paragraphs and a decision NOT to subject my readers to that, it came down to something very simple.

Life with CF isn't always just about CF. Sometimes, it's just life.

After 18 months of stumbling around trying to figure out how to cope with it, this simple realization seemed HUGE. Of course, I still struggle, and probably always will. It's hard to watch your child be dealt this hand. But I'm also kind of proud that we're not just saying we want him to live as normal a life as possible, we're actually doing it. We are addressing my health 'quirks', butting heads with our 'tween', pursuing our prospective career goals, and.....trying to buy a house. Which also means I am madly trying to rid our current home of clutter and junk that I don't want to deal with should we be successful. Somehow there is space for all these things between CF diets and tube feedings and breathing treatments and pills and vitamins and all the things I thought would consume every minute of forever. And yet it is still inextricably intertwined with every aspect of every day in ways that still sometimes surprise me. Don't get me wrong, so far I'm failing miserably at streamlining all the 'stuff', but it's no small miracle that I'm even trying.

Today amidst taking away all of my daughter's toys and discovering that Jackson had once again 'washed' his hair with his formula, the cat pooped beside the litter box, and I didn't accomplish ANY of my cleaning goals for the day, I managed to learn that. Sometimes, it's just life.

1 comment: